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I have been looking forward to NaNoWriMo this year! To get myself ready, I've been watching a lot of NaNoWriMo prep videos. It's something that I promised myself all year; a way that I could reconnect with my craft. Even though I've been flooded with an amazing amount...

October 15-21st is Multiple Hereditary Exostoses Awareness Week. Multiple Hereditary Exostoses (MHE) is an inherited disorder of bone growth, wherein people with the condition grow exostoses or boney bumps on their bones that vary in size, location, and number. Any...

Life has been a bit of a mixed bag lately, if I'm being perfectly honest. I'm sure this isn't a unique feeling, and that we've all been in a similar boat. Creativity speaking, the ideas are flowing like never before. I can't keep up, and I feel completely in love with...

When I was 16, I used to tell my mom I would never have kids. Although I loved them, I couldn’t bear the thought of them inheriting Multiple Hereditary Exostoses. I couldn’t fathom having to watch my child experience the same things I was experiencing. The pain, the...

When I was a teenage girl struggling with the complicated reality of living with a chronic pain bone disorder, a well-meaning loved one made this comment in response to something I said: "You are so brave. You experience pain every single day of your life, and you're...

Growing up, I was always told that you had to forgive people to be truly happy, and so early on...I developed this need to do just that. Forgive the people who hurt me, and try my hardest to understand why they were hurting me. I am an empathetic person. It's easy for...

Over the last few days, I've seen an overwhelming amount of black and white lady-selfies on my Instagram feed. The messages were always ones of women empowerment, and when I Googled the challenge yesterday (at 3 o'clock in the morning, mind you, during a bout of...

In March of 2020, I started what I thought was a supportive rare disease community with two fellow women I'd met through Instagram and other MHE support groups. These two women were Marie and Lauren. We were all tired of the lack of support in rare disease groups, and...

I have always been disabled, and I will always be disabled. These are two facts that I've had to come to accept early on in my life. Another thing I've learned is that a positive mindset is something everyone can benefit from, and a positive mindset becomes crucial...

We went camping last weekend, to the family property up north. After spending nearly 100 days in quarantine with the boys, it was needed; for us all.It's an instant reset, not just for me but for Matt and the kids as well. They are totally different up here; wild and...